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Visit Scott (Scoop) Butki's column >>

SCOTT (SCOOP) BUTKI

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A cynical idealist; To Read Me Is to Know Me (Mostly)
Articles Posted: 1426  Links Seeded: 10249
Member Since: 2/2007  Last Seen: 5/16/2012

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Money: The Link Between Autism and Vaccines - Newsweek

Seeded on Sat Jan 8, 2011 11:33 PM EST
Read ArticleArticle Source: Newsweek
health
Seeded by Scott (Scoop) Butki
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excerpt:"Like other persistent untruths—the belief that Obama is a Muslim, say—the endurance of these vaccine scares is due to multiple, interconnected causes. The Internet, where no view is too outrageous to masquerade as fact, has played a role, as has the media's habit of giving every story "two sides" long after one has been discredited. There's also politicians' instinct to pander to their most vocal and strident constituents, and public officials' ineptitude at communicating with the public.

But whatever the cause, the result has been as tragic as it is predictable. In recent years measles outbreaks in California, Illinois, New York, and Wisconsin have cost tens of millions of dollars to contain. In 2009 six unvaccinated children in southeastern Pennsylvania were infected with Haemophilus influenzae type b, or Hib, a disease that was all but wiped out in America 20 years ago. Two of them died. In 2009 in California, there were more cases of pertussis (a.k.a. whooping cough) than in any year since 1947, before its vaccine was in widespread use. Ten children in the state died after being infected. Nine of them were younger than 6 months old.

A little more than a year ago, my wife gave birth to our first child. As I know all too well, the fact that he's fully up to date on his shots offers no guarantees: no vaccine is 100 percent effective. That's especially obvious today, when low vaccination rates threaten the immunity of whole communities. If only there were a shot for irrational fears.

  • Enjoy this article? Help vote it up the 'Vine.

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  • Groups: Asperger's Syndrome, Autism
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  • Public Discussion (26)
Scott (Scoop) Butki

great piece. i'm tempted to set up an interview but it sounds like the same ground covered in the excellent book denialism which also asks why people are acting out of emotion instead of out of factual evidence
http://sbutki.newsvine.com/_news/2009/11/09/3473326-an-interview-with-michael-specter-about-denialism-how-irrational-thinking-hinders-scientific-progress-harms-the-planet-and-threatens-our-lives-

  • 2 votes
Reply#1 - Sat Jan 8, 2011 11:35 PM EST
chelli

What is sad about this, to me, is that before the movie "Rainman", most people had never even heard of Autism. I truly believe that the higher rates we are seeing now, are directly correlated to awareness and better diagnoses. Most cases are now refered to as "Spectrum" disorders, which is appropriate, because of the wide array of severity.

Getting vaccinations is crucial to all of us. For every skipped vaccine, hundreds and thousands could be exposed to a far deadlier disease. Is autism a greater risk than a deadly or maiming disease? I don't buy it, but apparently many do.

Thanks for sharing Scott!

  • 3 votes
Reply#2 - Sun Jan 9, 2011 12:06 AM EST
Scott (Scoop) Butki

more awareness and diagnosis is part of the equation but not all of it

  • 1 vote
#2.1 - Thu Jan 13, 2011 12:47 PM EST
chelli

No, it isn't all of it. I'm glad that kids are getting appropriate help in managing their disorders. Hopefully, kids will be getting their vaccinations, too.

  • 1 vote
#2.2 - Thu Jan 13, 2011 10:36 PM EST
Scott (Scoop) Butki

if i get this inteview, as i think is going to happen, i'll ask you guys to suggest some questions for the interview

  • 2 votes
#2.3 - Mon Jan 17, 2011 4:40 PM EST
Reply
rochart

Good seed Scoop.

Never let the facts get in the way of a good rationalization!

I've tried it in a select few situations and it does work wonderfully.

  • 4 votes
Reply#3 - Sun Jan 9, 2011 12:51 AM EST
Scott (Scoop) Butki

glad you two liked the seed

  • 2 votes
#3.1 - Thu Jan 13, 2011 12:47 PM EST
Reply
Scott (Scoop) Butki

OK it was just confirmed that i can interview Seth Mnookin about his book:

The Panic Virus: A True Story of Medicine, Science, and Fear

As recently as last night he was interviewed on BBC.
do you guys have any questions you want me to ask him? As i told the publicist in requesting the interview this book and interview will cover some of the same ground as my interview on denialism (which had a chapter on the autism-vaccine myths) but i think the issues are well worth going over even if there is overlap

    Reply#4 - Wed Jan 26, 2011 2:05 PM EST
    chelli

    My question is: How do you convince parents to agree with the diagnosis to get the best plan for their child, without them worrying about the stigmatism of having a a child with a "disorder"? I've encountered a few preteens that are pretty clearly autistic, yet they are not getting the training and very specific social cues help they need to succeed with their disorder because the parents refuse to acknowledge it. To me, the earliest intervention is best--just like any other problem. It's probably already covered by you Scott, but maybe there is some nuance. I really appreciate you doing this and look forward to the interview.

    • 1 vote
    Reply#5 - Thu Jan 27, 2011 12:15 AM EST
    Scott (Scoop) Butki

    Good question but i'm not sure this is the author to answer it - his focus is on why people this disproven myth vs what to do with those kids who turn out to be autistic

    The two questions i've come up with so far are what he thinks of this idea of denialism that some deny facts in favor of emotions

    and if he thinks part of the problem is we live in a culture of fear- with tv news partly to blame - and so people accept simple explanations (vaccine link) in a more complicated world.

    but if you want i can try to answer your question directly since i probably have more knowledge and experience than the author. heck 2 of the 4 guys i work with - possibly 3- are autistic and ranging in age from about 30 to about 70.

    i talked about some of that work here

    You might encourage your friends with autistic kids to check out Horseboy, either the book or the documentary, as well as the temple grandin movie and some of her books for some foundation to understand things.

    two related pieces which i'll seed tonite

    http://blogs.forbes.com/matthewherper/2011/01/18/why-salons-autism-retraction-matters/?boxes=businesschannelsections

    Autism Blog - Seth Mnookin responds to Andrew Wakefield on CNN « Left Brain/Right Brain

    • 1 vote
    #5.1 - Thu Jan 27, 2011 4:46 PM EST
    chelli

    Thanks Scott.

    • 1 vote
    #5.2 - Thu Jan 27, 2011 11:36 PM EST
    Scott (Scoop) Butki

    if you elaborate on the problem/question here or via email i can be more specific (and won't give you 8,000 links that time)

    • 1 vote
    #5.3 - Fri Jan 28, 2011 8:46 AM EST
    chelli

    Scott,

    I basically am asking, how do parents, or professionals get the parents, to remove the emotional response of having a child with a disorder and turn it into an action plan to get the child's needs met. Honestly, it is emotional any way you look at it. Parents need the tools to explain it to others, and to themselves. They need to know that it is not their fault. Parents are seriously so afraid to deal with being blamed, that they are denying their children proven vaccines.

    I thought I was being clear, but apparently not. If I still haven't been specific enough, that's okay. When I get more time, I will be reading your "8,000" links. LOL! I appreciate the links, I just have to find the time...cheese and crackers...now if that were included in the links....I'd have eaten them up 2 weeks ago ;) Have a fabulous weekend!

    • 1 vote
    #5.4 - Sat Jan 29, 2011 1:07 AM EST
    Scott (Scoop) Butki

    i can link you to green tea and sweet tea but sorry no cheese and crackers

    but seriously, if their kids are in school they have opportunity to develop a plan for how the school will work with their child and they should be offered a ton of resources - there's lots of good books and web sites (you just have to look for credible sources) - about how to do this kind of work.

    i think its helpful when people with autistic kids read books, see documentaries, etc and most importantly talk directly to others with autism for then they start to see things that may have seemed but was easily explained away (many autistics, for example, dont like to look people in the face let alone the eyes) is common and can be dealt with and addressed.

    hope that helps.

    • 1 vote
    #5.5 - Sat Jan 29, 2011 1:22 PM EST
    icegal

    I basically am asking, how do parents, or professionals get the parents, to remove the emotional response of having a child with a disorder and turn it into an action plan to get the child's needs met. Honestly, it is emotional any way you look at it. Parents need the tools to explain it to others, and to themselves.

    Hi chelli. IMHO....

    They can do that by applying logic to the process of diagnosis. I think parents get all caught up in the picture of what they want their kid to be, and morn the loss of that ideal when they find out it's going to be different. They need to accept their kids for what they are, and not to try to fit them into a square peg.

    I was happy when I found out that my son, my daughter, and I had Asperger's. I finally had a name and an explanation for why I saw things different, and for why people thought I was a freak. I thought everybody was like me, and I couldn't see that "normal people" were different. oh well. :)

    Scott. I have a question to ask, and mabey it would pertain to your interview:

    would it help bring logic to the "autism discussion" for neurotypicals, if more people with autism could and would speak out? Instead of looking for a cure or a cause, (I believe it's genetic) why not have more education, acceptance, and an acceptable meshing together. Why demonize that which is different?

    • 2 votes
    #5.6 - Sun Jan 30, 2011 4:06 PM EST
    Scott (Scoop) Butki

    that's why i support focusing on treatment vs pointing finger at cause

    • 3 votes
    #5.7 - Mon Jan 31, 2011 12:03 AM EST
    icegal

    I knew I liked you for some reason! ;) :p

    • 1 vote
    #5.8 - Mon Jan 31, 2011 9:34 AM EST
    Scott (Scoop) Butki

    ha - thanks

      #5.9 - Mon Jan 31, 2011 11:13 AM EST
      icegal

      I hope I didn't offend you Scott. :(

      My sense of humor starts with the 3 stooges, the pink panther, and Chris Farley. My attempts at other kinds of humor tend to screw up more frequently than I like. So if I did offend you, I am sorry, that was not my intention.

        #5.10 - Mon Jan 31, 2011 2:35 PM EST
        Scott (Scoop) Butki

        no offense taken

          #5.11 - Mon Jan 31, 2011 3:03 PM EST
          icegal

          Thanks! :)

            #5.12 - Mon Jan 31, 2011 6:17 PM EST
            Reply
            Scott (Scoop) Butki

            here's the questions I'm currently planning on asking for my interview with the author. If you have any other questions you want me to ask post as a comment or email me asap

            1) Why did you decide to write this book? What is your goal with this book?

            2) What has been the response to this book from those camps who still think there's a vaccination-autism link? I came across this
            http://www.autismone.org/content/terms-and-conditions-dialing-back-rhetoric-vaccine-autism-war
            when I googled Autism One, shocked that they seem to still be sticking to their story. I wasnt sure if their response was to your book and others or what?

            3) Would you encourage people to get every vaccination offered by their doctors?

            4) What's your verdict on the news media regarding this issue: Were they duped? Did they drop the ball in attempt for simple answers?

            5) What do you think of Michael Specters' book, Denialism, (I interviewed him here http://sbutki.newsvine.com/_news/2009/11/09/3473326-an-interview-with-michael-specter-about-denialism-how-irrational-thinking-hinders-scientific-progress-harms-the-planet-and-threatens-our-lives-) and his theory that the believed vaccine myth is part of something bigger namely people choosing to believe emotion rather than scientific fact?

            6) Do you think some people's continued belief in this vaccine-autism link is due partly to us living in a culture of fear where some long for simple explanations - i.e. avoid vaccine, avoid autism ta da - in a more complicated world?

            7) Do you think those who most need to read this book - those believing in such a link - are going to? Or are they your target audience? Put another way, who IS your target audience with this book?

            8) What were you surprised to learn when researching and writing the book? Were you surprised, for example, by how much influence Jenny McCarthy and Oprah have?

            9) What are you working on next?

              Reply#6 - Thu Feb 3, 2011 1:16 PM EST
              icegal

              They all look good to me. I would add, do people seem to ignore how complicated autism is, as "a mental health issue", rather than addressing it as a whole body issue?

              side note:

              who is jenny and why does oprah have that much influence?

              • 1 vote
              #6.1 - Fri Feb 4, 2011 6:07 PM EST
              Scott (Scoop) Butki

              Jenny McCarthy was a playboy playmate and actress of sorts - she blamed vaccines for her son's autism... later turned out a) her son did not have autism he had some other problem and b) she ignored all the facts disproving her statement as did Oprah

              oprah has enough influence to start her own channel - which i've noted is being attacked for not being diverse enough

              thanks for the compliment regarding my questions

                #6.2 - Mon Feb 7, 2011 12:16 AM EST
                icegal

                Thanks for the info. I have never watched Oprah on a regular basis, even when I was a kid. As clean as her show is (as compared to Heraldo?) she seemed like a giant flake. I'm sure she is nice and all...but still.

                • 1 vote
                #6.3 - Mon Feb 7, 2011 11:11 AM EST
                Scott (Scoop) Butki

                i havent ever watched her on a regular basis either but i know that shes not really tough on her guests

                  #6.4 - Mon Feb 7, 2011 6:05 PM EST
                  Reply
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